Citylife > Press Release
  Home Contact us Add to Favourites
Most Recent Postings
More Press Releses
Featured Sections

Event Finder
A daily roundup of exhibitions, promotions and other events in Dubai and the rest of the Emirates.
Submit an Event
Latest Dubai Press Releases >>


Doctors Offer New Approach To Treat Disease That Affects 5 In A Million

 Abu Dhabi, United Arab Emirates, August 2, 2021:  After 30 years of struggling with a rare autoimmune disease, Dania Malki has finally found relief thanks to Cleveland Clinic Abu Dhabi, an integral part of Mubadala Health.  

It was 30 years ago that Dania, a Syrian American communications professional and aspiring artist, was diagnosed with eosinophilic granulomatosis with polyangiitis (EGPA), a rare disease that only affects around five in every million people. Over the years, the severity of Dania's symptoms had fluctuated as doctors tried a wide variety of medications to control her condition. Despite long periods where she enjoyed minimal symptoms, as her condition progressed, Dania's world became smaller. Eventually, even walking more than a few steps became a challenge as she struggled for breath. Desperate to find some relief and take her life back, Dania visited Cleveland Clinic Abu Dhabi where she began an innovative new treatment that has allowed her to start exercising, going out to see friends and looking to the future once more.  

“When Dania came to Cleveland Clinic Abu Dhabi, she had been struggling for a very long time. She was highly symptomatic, she struggled with her breathing and had many limitations in her daily life due to her shortness of breath and coughing. She had received a lot of care over the years but was never able to achieve proper control of her symptoms. When I look back on her the first time we saw her and compare it to now, the change in her life is really stunning,” says Dr. Fulvio Salvo, an immunologist at Cleveland Clinic Abu Dhabi. 

With no known cause or available cure, EGPA affects the immune system and causes inflammation in the blood vessels around the body. While it can affect many organs including the heart, kidneys and nerves, it most commonly affects the lungs and upper airways. The condition is strongly associated with a history of allergies and asthma occurring almost exclusively in patients with severe asthma. The most common symptoms of EGPA are shortness of breath due to poorly controlled asthma, fatigue, nasal obstruction, muscle and joint pain. 

“There were years where I just couldn't do anything. I used to work full time even though I would feel very weak by the end of the day but 8 years ago I had to give up work because I had become too weak to continue. I couldn't even walk down a flight of stairs without losing my breath. I would have to lie down to rest every two hours. My social life suffered because I would feel too weak to see people. I love to paint and there were times when the smell of the paint would affect me so much I couldn't even do that anymore,” continues Dania.  

Since being diagnosed, Dania had seen a great many doctors looking for relief from her symptoms. She had tried numerous courses of treatment including asthma inhalers and even immunosuppressants usually used in transplant patients. However, one medication had been a constant in her life – cortisone.   
“After being diagnosed with EGPA I was going around from doctor to doctor. Some would know about EGPA, but most of them would just try to treat my asthma. I wasn't really treated -- I was just on long term cortisone. Every so often, doctors would try to stop the cortisone, telling me it's not good to be on it for so long and my symptoms would come straight back. At the beginning cortisone is like a magic pill, because it really minimizes symptoms but eventually it becomes almost toxic,” says Dania. 

In 2019, Dania decided to visit Cleveland Clinic Abu Dhabi as her symptoms had worsened again. She began losing weight rapidly, experiencing extreme allergies and struggled to take more than a few of steps without stopping to catch her breath. 

“When we first saw Dania, her symptoms were ruling her life despite the fact that she was on the maximal dose of asthma control medications, immune suppressants and cortisone, the long-term effect of which can be very serious. I was really concerned with the fact that she had been using cortisone for more than 20 years. We decided to try a new treatment, a biologic medication that's available here and has been shown to be effective in treating EGPA and I'm pleased to say we have seen a real transformation in Dania's condition,” continues Dr. Salvo. 

After beginning her new treatment, injections administered once a month, Dania's care team began to slowly reduce her dose of other medications. As her condition improved, she was able to stop taking immunosuppressants, some of her asthma medications and now only receives a minimal dose of cortisone. Her condition has improved so much that she is exercising, planning to travel and hoping to display her art - paintings of street scenes and landscapes of Syria, her ancestral home. 

“The moment I got to Cleveland Clinic Abu Dhabi, I knew this time would be different. My doctors knew all about EGPA and told me managing that was key to helping me. I wish I had found much sooner the kind of care my team gives me now. It was definitely a waste of time in not finding the right doctors who could take my case and really get to the root cause of my problems earlier. But I can't regret that time as I know medicine evolves quickly and it has given me a fresh perspective that I hope to bring to my art,” concludes Dania.   


Posted by : GoDubai Editorial Team
Viewed 5490 times
Posted on : Monday, August 2, 2021  
Replication or redistribution in whole or in part is expressly prohibited without the prior written consent of GoDubai.com.
Previous Story : Ministry of Health becomes first Body Globally to obtain GC-Mark Accreditation in Data Quality Manag...
Next Story : Canadian Specialist Hospital, KEF Healthcare sign MoU to Open Centre for Cardiac Sciences on MCN Pla...
Email this article Print this article

Share this article with your friends and followers


Back to Top  
Most Viewed Press Release posted in the last 7 days
Al Ansari Exchange sees surge in non-resident transactions in first 10 days of E...
Big Crown ProPilot Big Date Bronze- Flair Time
Pandora Introduces New Limited-Edition Charm in Support of Unicef
TURKEY'S Rumeysa Gelgi is warded GUINNESS WORLD RECORDS™ Title for Tallest Woman...
LG Releases Preliminary Earnings For Third-Quarter 2021
Wash Day Essentials: The Only Collection You'll Need for Perfect Curls
New Program for Saudi Arabia Healthcare Professionals Targets Healthcare Managem...
TCS Saudi Arabia Wins World Leadership Congress Award
OMEGA Reveals the Secret of James Bond's Watch
Ixora Organic Beauty Continues Its Fight for Health With Its Latest Breast Cance...
Malabar Gold & Diamonds Signs Up Superstar Karthi as Brand Ambassador in Tamil Nadu
Oblique Creations Showcases the A/W 21 Collection in Dubai
Jaguar Land Rover Trials World-first Digital Supply Chain for Leather Using Bloc...
Germany Lifts Travel Restrictions for GCC Travellers
KENZO Sport Collection
Leading Cloud Managed Service Provider G7 CR Technologies to Launch STAB Program...
Ministry of Health to Showcase State-of-the-Art Digital Health Services at GITEX...
Expo 2020 Opens a New Era for Dubai's Tourism Industry
Etihad Raises US$1.2 Billion in First Sustainability-Linked ESG Loan in Global A...
Hitachi Energy goes Live
Toric Hemispheres Retrograde Steel Blue The Distinguished Traveler
International Protein (UAE), Anda Burada (Turkey) & Shadana Yoga and SunBox from...
UAE to Form Women's World Tour Team Exciting Project Set to Launch for 2022
Story of Hope: UAE Resident Shares the Importance of Early Detection this Breast...
Award-Winning Director Joe Wright Partners with Samsung to Unveil a New Film Cap...
Rashed Clinches Third World F2 Crown With Victory in Portugal
QNET Supports Community Activity to Raise Funds for Indus Hospital in Pakistan
Pink October: Downtown Dubai Will Illuminate in Pink to Raise Awareness This Weekend
Tribal Thumka Is Back With a New Flair!
An Expo-nential QX80 Offer Brought to you by INFINITI of Arabian Automobiles
Dubai Municipality Celebrates World Food Day
du Set to Showcase Solutions that will Empower UAE Government Entities at GITEX ...
Mashreq NEO to become first Digital Bank in UAE to use Facial Recognition for Ba...
QS Arab Region Rankings 2022: Abu Dhabi University Ranks Among the Top 21% of Ed...
Food Waste takes the stage to mark World Food Day at EXPO 2020
Union Coop ‘Humanitarian Support Program': Employees Contribute AED 1,344,000 si...
Abu Dhabi University Signs a Memorandum of Understanding with ATOMENA Energy Sol...
UAE Government Leaders, African Ministers and MIT Expert Share Insights on Day 1...
Sharjah Set to Host Two Popular Events for Education and Employment
Dubai Culture and Letswork Collaborate to Provide Creative Spaces in Dubai
Samsung Announces New Artificial Intelligence Course to Empower Young People Acr...
Gift of Gold - Get Guaranteed Gold Coins with Malabar Gold & Diamonds
Nissan Marks the Launch of Expo 2020 Dubai with Exciting ‘Let's Move' Campaign
'Astronomer's Paradise' Chile Lines Up Space Week Programmes at Expo 2020 Dubai
Past and Present Students Sing the Praises of GEMS Modern Academy as it Celebrat...
Etihad Airways Travel Advice For Half-Term Break
Zoho Unveils New Cutting-edge Apps and Services in Zoho One, The Operating Syste...
Trentin takes Podium at Giro del Veneto Covi also among Top-5
Dubai Health Authority Honoured for Excellence in Implementing Business Process
Dubai Police Recover Coach Cosmin Olăroiu's Stolen Watch and Arrest Three S...